Ethical frameworks are urgently needed in this rapidly-developing field to rebalance power in genetic data and ensure that people reap its benefits and are protected from harm.
Excellent article Alice! The Eleanor Genome Protocol - Human Data with Human Rights should be the framework for all genomic data collections around the world.
The promise and peril of the rapid expansion of genomic datasets
Excellent article Alice! The Eleanor Genome Protocol - Human Data with Human Rights should be the framework for all genomic data collections around the world.